Saturday, September 21, 2013

Vision Therapy

In a few weeks I will be documenting Liam's Vision Therapy. We had him tested a few weeks ago and got all the results. He started his therapy Thursday September 19th, 2013. I need some time to process this new journey in our lives. As soon as I do I will share it with everyone. Wish us luck!

9 months on Apriso

Yesterday we went to Liam's GI doctor for a check up. It has been 9 months since Liam started taking Apriso. Lots of things have changed. We no longer have to break the capsule apart and get him to swallow the medicine in one big gulp with juice. He has learned how to swallow the pills. He has also not had any huge flare ups. He has had the occasional stomach pains followed with a day or two of diarrhea but then he gets back to normal. We are learning that certain foods will cause him great pain. He cannot eat any french fries from restaurants. Its not the potato that is the problem but the oil they fry it in. I often will bring fruit and some veggies with us when we go out to eat. We order him a protein like hamburger without the bun, grilled chicken, ribs, or steak to go along with the food I brought.

He has developed a dry cough. Its going on 4 months, but she said we need to just ride it out. I asked if it could be a side effect from the Apriso. She at first said " no I do not believe its from the medicine". But then later said "well I suppose anything can happen from taking a medicine everyday, but its a low percentage." I wonder if it could be a sign of Acid Reflux, but the benefits out way the cough. It also could just be something new he is dealing with since people with Autoimmune diseases often deal with more than just the initial disease itself. So for now we will ride it out and hope his body fights it.

She was very happy with his weight gain and growth. She said he has finally caught up from all the weight he loss over the years. He has also had a huge growth spurt. This says that he is absorbing nutrients and is becoming healthy. Fingers cross this just continues.

We are going to run a few labs and make sure everything looks good. Our goal is for continual good health and flare up free. If we can maintain he will go in for a scope during the Summer of 2014. This made Mike and I very happy. We have a follow up appointment in 3-4 months as long as he continues to do well on the Apriso. So far this mama is happy that her boy is doing so well.

Typical School Lunch

This post isn't just what Liam eats, but what we eat as a family for lunch. Liam has a hard time digesting raw vegetables so for him we modify. I will give examples of when we modify.


  • Turkey roll up: Turkey (nitrate free) rolled up with pickles, cucumber or  cherry tomatoes for Liam Savy my daughter will put mayo and mustard on the turkey then roll up either a pickle, bell pepper, cucumber, or avocado.  Sometimes for Savy we wrap the meat in Lettuce. Liam cannot eat any lettuce so he stick with just the meat
  • Nitrate free Salami
  • Nitrate free Ham
  • Nitrate free Bacon
  • Chicken legs
  • Homemade Chicken Fingers
  • Salad with veggies and left over meat (Savy eats this but Liam can't have salad)
  • Steak pieces left over from dinner
  • Hummus with carrots, cucumber, bell pepper, mushrooms, sugar snap peas, broccoli, and cauliflower. If you notice she is not a fan of tomatoes. Liam does not eat Hummus. He doesn't like it. I often wonder if it upsets his tummy since he has never liked it.
  • Jerky

  •  watermelon
  •  strawberries
  •  nectarines
  •  peaches
  •  grapes
  • pineapple 
  • pears
  • plums
  • kiwis
  • berries

Fall / Winter :
  • apple slices
  • orange slices
  • frozen or fresh pineapple
  • grapes if good
  • kiwi
  • Packaged Dole mandarins or pineapple in a container that is in its own juices. I don't buy the ones with syrup in them.  
  • Carrots- Liam can eat two baby carrots
  • Cucumber slices- Liam can eat as long as no skin
  • Snap Peas- Liam can eat a couple raw but I blanch them so he can have more
  • Small Bell Peppers or Sliced- Liam does okay with these as long as its not a lot
  • Cherry Tomatoes- Liam loves these
  • Pickles
  • Celery- Liam cannot eat Celery


  • Fruit leathers
  • Bunny snacks
  • Applesauce Pouches
  • Fruit and Veggie Pouches
  • Dried Cranberries
  • Raisins
  • Trail Mix: Raw almonds, cashews, sunflowers, and pistachios 
  • Bars: Homemade, KIND, and LARA 
  • Kettle in Olive Oil Potato Chips
  • Dried Fruit
  • Plantains
  • Coconut Yogurt
  • Jello

If you need more ideas ask away.