Hard for people to understand

I was talking to my good friend who is also our pediatrician's nurse. I was saying that it is so hard for people to understand, because looking at Liam you would never know what his body is going through. Most people think he looks normal. What they don't realize is his little body is attacking itself. They normally don't see the episodes of diarrhea he has, because we both do a good job at hiding it. He will hold it as long as he can so people don't know. People don't realize how skinny he is, because he wears big clothes. If you were to see my little guy naked you would be shocked. He has tiny arms and legs, especially during a flare up. They see a round face and think "oh he is healthy". Little do they know that is called a "moon" face and its from the medication. Liam is able to manage his behavior at school (which amazes me to this day), but when he gets home it can be awful. He will scream, cry, get extremely hyper and not know how to control himself. He will be running to the bathroom 5 or six times after school and will cry because he hurts. He will not let us hold him or touch him. He will refuse food or will act like he isn't getting enough food. Its hard on all of us. I think it can be the hardest on his sister. She has to deal with his annoying behaviors and ups and downs too. She often gets into trouble, because she is so frustrated with him she will just punch him, instead of asking for help. I am trying my best to intervene and help her before it comes to that, but I am not always able to. 

Today, I had a freak out moment, because my friend was taking her daughter to get the nasal flu spray vaccine. Kids who are on long term prednisone, usually have low immune systems. When Liam was two we were told to stay away from people who got the nasal flu spray. I felt so bad, because I panicked and told the child and mom that Liam and her should not play together for a few days. I must seem like a crazy mom. I did not mean to sound crazy or upset anyone. Its just so hard, because we have to think about things that most people don't. I did not handle that situation very well. I feel bad. I hope with time I can learn how to handle things like that, instead of freaking out and scaring someone. 
I just don't want Liam to get the flu on top of dealing with U.C. UGH!!! So in talking with my nurse friend she told me that if I hear of a lot of kids in his class getting it or if lots of kids are getting sick I need to pull him for a while. So now I wait and see what this fall cold and flu season looks like. 
Has anyone had a freak out moment where you looked like a crazy mom?????